TAA NYC
FAMILY SUPPORT GROUPS - VIRTUAL SESSIONS
Join us at our monthly support group, held on Zoom on the 2nd Tuesday of each month from 7:30pm - 8:45pm ET. Advanced registration is required for each session.
Topics include coping strategies and self-care, parenting children with tics, supportive family routines, finding resources & coordinating care, and partnering with schools. Participants are asked to affirm our Group Norms and Values prior to attending.
NYC MENTORING BRUNCH JUNE 9
Welcome back to our first Mentoring Brunch since the pandemic, where brunch will be served and community will be built!
We are excited to have you join us on June 9th (Noon to 3pm) at The Prohibition (503 Columbus Avenue). Everyone is welcome –all ages and whether you have TS or not.
We will also have three inspiring speakers:
Alexandra Cuttler
(Hudson Valley)
Alicia Santiago
(The Bronx)
Jeff DeCicco
(New Jersey)
Alongside a special guest, Barbara Ann Michaels (Jester of the Peace). Barbara is a performance artist creating participatory experiences on humor and wellness. Barbara Ann’s interactive activations and installations form a whole “town” for community self-expression.
Please RSVP HERE if you are interested in joining us and we look forward to seeing you on June 9th!
Tourette Expressions Apparel
Craig Mollins has just launched a Tourette syndrome apparel project. Where he makes Tourette inspired paintings, and puts them on clothing. The inspiration is to help raise awareness of Tourette syndrome, and to give people who have Tourette’s a creative way to let others know they have Tourette’s.
You can see more at https://touretteexpressions.com/
Points of Light
Due to the amazing work of one of our Young Adult Ambassadors, Alex Cutler, the following 5 monuments will be lit up teal in honor of Tourette Syndrome Awareness Month.
1 World Trade Center
285 Fulton street
Manhattan
Moynihan (New Penn) Station
350 West 33rd Street
421 8th Avenue
Manhattan
MTA Long Island Railroad East End ( Old) Penn Station
33rd Street and Seventh Avenue
Manhattan
Grand Central Station
Pershing Square Viaduct
Park Avenue 40th to 46th Street
Manhattan
Kosciusko Bridge
Over Newtown Creek
Connecting Greenpoint Brooklyn
and Maspeth Queens
The lighting will begin at dusk.
Around 7:30/ 8:00pm on 5/19
Alexandra will be featured on Sunday Morning TV ABC channel 7 and appear as speaker at our upcoming mentoring brunch on June 9th.
For anyone able to go see the lighting, please take photos and share them with us at TSANYCChapter@gmail.com.
Happy TS Awareness Month!
Take 2 Minutes to Submit an Action Letter
More than 320 advocates participated in Tourette National Advocacy Day, in Washington, DC, but we still need you to Submit a take action letter and ask others to do the same so we can ensure improved support and vital funding for the Tourette Syndrome and Tic Disorders community!
Submitting a Take Action Letter takes less than 2 minutes and makes a huge impact. Simply fill in the form, then press Send Message. If you are comfortable, you are invited to add a personal story to the letter.
When you're finished submitting your letter, don't forget to let everyone know by sharing a post on social media with #IAdvocateFor and tagging the TAA. We would love to reshare your post. Tell the world who you're advocating for!
Submit your action letter HERE
BECOME A MEMBER
When you join TAA as a member, you play a critical role in making a difference and you join thousands of individuals, families and professionals who are working to raise public awareness, advance scientific understanding and treatment options, educate professionals, and more!
Plus, a percentage of your membership fee goes directly to our local chapter to help fund our programs and services.
A Toolkit for Teachers
As schools across the state open this week, parents of our kids are both excited and apprehensive. Will the teachers know anything about TS? Will my child’s teachers understand and accept my child with all of their symptoms? How can I approach the teachers, make sure that they are educated about these disorders so that my child can have the ultimate opportunity of having a great school year? Download our TAA Eductional Toolkit for Teaching Children with TS.
TALKING BACK
Check out our pal Jamie Sanders' response video to a careless remark about Tourette Jimmy Fallon made and his thoughts on all Tourette-related jokes.
Comic Book Superhero Twitcha
for School and Remote Learning
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Comic is available in hard copy or downloadable format
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The themes of Twitcha include: Acceptance, Empowerment, Anti-Bullying
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Free, downloadable and complete lesson plan created by a teacher. Plus a coloring sheet for the younger children.
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Each component of the lesson plan provided coincides with the New Jersey Student Learning Standards.
Your donations fund what we do.
Company matches are welcome.
Thank you from the TAA NYC Chapter
serving the NYC Tourette Community.
CHILD MIND INSTITUTE IS OFFERING NO COST EVALUATIONS
The Healthy Brain Network continues to provide comprehensive evaluations and reports with recommendations to families.
Participating families receive the following at no-cost:
▶ Comprehensive, study-related diagnostic evaluation
including academic, social-emotional, and attention
and reasoning skills assessments
▶ Feedback report detailing results that can be used
to inform treatment and classroom instruction
(IEP/504 plan), as well as College Board accommodations
▶ Consultation with a licensed clinician to
discuss results and recommendations
▶ Treatment recommendations and
local referrals (if appropriate)
▶ Up to $150 compensation for your time
Contact
347.694.HELP (347.694.4357)
healthybrainnetwork.org
hbn@childmind.org
ARE YOU PASSIONATE ABOUT SPREADING TOURETTE SYNDROME AWARENESS?
Contact us if you would like to become a trained One Tic at a Time volunteer! We'll arm you with the information and strategies- all you need is the heart and desire to educate others as to what TS is all about. Email us for more information! chapter@tsa-nyc.org.
NYC Seminar Center
Special thanks to Tod Shapiro, principal and owner of the NYC Seminar Center, for providing a meeting space for our board of directors.
NYC Seminar and Conference Center 71 West 23rd Street, New York, NY 10010 Toll Free: 800-326-5494 • NYC: 646-336-4455