TAA NYC
TAA NYC SUPPORT GROUP
Online Support Group
VIRTUAL Sessions
Alan Brown, Mindfulness Coach, will curate the session. The group is open to all those with TS and their loved ones.
7:30pm - 8:45pm
**Please click the dates above that you'd like to attend and register in advance**
Our chapter relies on donations as the primary means of providing resources like our monthly support group and our school programs. If you have the means to make a financial contribution at this time, please click here to make a donation.
If you’ve never used Zoom before, please click zoom.us/test ahead of time to download and familiarize yourself with the platform.
BECOME A MEMBER
When you join TAA as a member, you play a critical role in making a difference and you join thousands of individuals, families and professionals who are working to raise public awareness, advance scientific understanding and treatment options, educate professionals, and more! Plus, a percentage of your membership fee goes directly to our local chapter to help fund our programs and services.
TAA Upcoming Events
March 17th at 7pm EST: Trastorno de la Atencion e Hiperactividad - ADHD and TS - Webinar
Acompáñenos en nuestra presentación del día Jueves 17 de Marzo a las 7 PM. El Dr. Pedro Weisleder de Nationwide Children's Hospital nos hablara sobre la relación entre el síndrome de Tourette y el síndrome del Trastorno por Déficit Atencional con Hiperactividad (TDAH).
April 2 at 9am EST: Tourette Connect Conference - TAA Wisconsin Chapter
The Wisconsin Tourette Association will be hosting The Tourette Connect Conference. All are welcome to attend.
April 5 at 7pm EST: Filling Your Cup: Self-Compassion while Parenting your Child with Tourette Syndrome
Dr. Phelps will discuss how parents can create a compassionate context where they align their values and actions.
April 29-30: Comprehensive Behavioral Intervention for Tics (CBIT) - Virtual OT-BTI Training
This training will provide information about Tourette Syndrome, common co-morbidities, and participants will become certified in CBIT. Open exclusively to occupational therapists.
May 13-15: 2022 National Conference
Attend presentations in Minneapolis, MN that enrich your knowledge of the condition, and connect with members of the TS community.
June 12: National Awareness 5k Run/Walk
Save the date for our National Awareness 5k Run/Walk!
Symposium on Anxiety in TS
World's First Genetic Sharing Resource
HOW CAN I HELP?
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Email familystudy@biology.rutgers.edu to become part of this breakthrough research. The TIC Genetics study is actively seeking families to donate their DNA to be studied. Simply email them with your interest and they will send you further information.
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You can also donate to the Faith W. Rice Legacy Fund, which helps NJCTS continue the support of this very important research. A program that was very near and dear to Faith's heart.
Webinar March 21, 6-7:30PM
NYU Langone Health presents:
Treatment for Tourette and Tic Disorders: Behavioral therapy, Psychopharmacology, and Deep Brain Stimulation
Participants will learn from a panel of experts about prevalence and presentation of tics and Tourette Disorder, with a specific focus on evidence-based interventions for improving outcomes. Participants will hear from NYU Langone Health clinical psychologists, psychiatrists, and neurosurgeons about Comprehensive Behavioral Intervention for Tics (CBIT), psychopharmacology, as well as Deep Brain Stimulation.
Support Groups
For parents of youth with tics/Tourette Disorder
Mark Knepley, PhD and Jordan Davis, PhD, will lead a 60-minute one-time virtual support group focused on psychosocial support for parents or adult caregivers of youth with tics and Tourette Disorder. Participants will also review practical strategies for managing stress and anxiety related to tics and Tourette’s Disorder, and gain support from attendees with similar experiences.
Tuesday April 5th, 6:30-7:30 PM - Registration Link
For teenagers and adolescents with tics/Tourette Disorder
Mark Knepley, PhD and Jordan Davis, PhD, will lead a 60-minute one-time virtual support group focused on psychosocial support for teenagers and adolescent (13-18) with tics and Tourette Disorder. Participants will also review practical strategies for managing stress and anxiety related to tics and Tourette’s Disorder, and gain support from attendees with similar experiences.
Thursday April 19th, 6:30-7:30 PM - Registration Link
For children (12 and younger) with tics/Tourette Disorder
Mark Knepley, PhD and Jordan Davis, PhD, will lead a 60-minute one-time virtual support group focused on psychosocial support for children (12 and younger) with tics and Tourette Disorder. Participants will also review practical strategies for managing stress and anxiety related to tics and Tourette’s Disorder, and gain support from attendees with similar experiences.Thursday April 14th, 6:30-7:30 PM - Registration Link
Treatment for Tourette and Tic Disorders Webinar
NYU Langone Health presents:
Treatment for Tourette and Tic Disorders:Behavioral therapy, Psychopharmacology, and Deep Brain Stimulation
Participants will learn from a panel of experts about prevalence and presentation of tics and Tourette Disorder, with a specific focus on evidence-based interventions for improving outcomes. Participants will hear from NYU Langone Health clinical psychologists, psychiatrists, and neurosurgeons about Comprehensive Behavioral Intervention for Tics (CBIT), psychopharmacology, as well as Deep Brain Stimulation.
March 21st, 6-7:30 PM
Taming Tics Together
A 5-Day Program Offered on a Rolling Basis
Oliver Sacks: His Own Life on PBS
Featuring the TS community's own Lowell Handler
This documentary, a part of PBS’s American Masters series, will touch on Tourette Syndrome by way of TAA NYC's Lowell Handler who is featured both in the PBS special and in Sacks’ last posthumous book release Everything in its Place, (Knopf April 2019) which includes a chapter called “Travels with Lowell” that chronicles their trips together throughout the U.S., Canada, and Europe. Learn more about Lowell at: https://www.lowellhandler.com/about/
pbs.org/oliversacks and the PBS Video app.
TALKING TO KIDS ABOUT CORONAVIRUS
Our friends from the Long Island Chapter of TAA have compiled the below resources:
Huffington Post: Coronavirus: How to Talk to Your Kids About the Disease
Unstuck: an OCD Kids Movie Resource Page on the Coronavirus
Child Mind Institute: Talking to Kids About the Coronavirus
Huffington Post: Coronavirus Tag? The Pandemic has Become Part of Kids’ Playtime
Go Zen: Helping Kids Manage Anxiety Around the Coronavirus (Expert videos)
International OCD Foundation: Talking to Kids About COVID-19
TALKING BACK
Check out our pal Jamie Sanders' response video to a careless remark about Tourette Jimmy Fallon made and his thoughts on all Tourette-related jokes.
CONNECT WITH US ONLINE
Your donations fund what we do.
Company matches are welcome.
Thank you from the TAA NYC Chapter
serving the NYC Tourette Community.
MONTHLY-ish MEETUP
NYC TAA Meetups are currently on pause.
CHILD MIND INSTITUTE IS OFFERING NO COST EVALUATIONS
The Healthy Brain Network continues to provide comprehensive evaluations and reports with recommendations to families.
Participating families receive the following at no-cost:
▶ Comprehensive, study-related diagnostic evaluation
including academic, social-emotional, and attention
and reasoning skills assessments
▶ Feedback report detailing results that can be used
to inform treatment and classroom instruction
(IEP/504 plan), as well as College Board accommodations
▶ Consultation with a licensed clinician to
discuss results and recommendations
▶ Treatment recommendations and
local referrals (if appropriate)
▶ Up to $150 compensation for your time
Contact
347.694.HELP (347.694.4357)
healthybrainnetwork.org
hbn@childmind.org
Comic Book Superhero Twitcha
for School and Remote Learning
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Comic is available in hard copy or downloadable format
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The themes of Twitcha include: Acceptance, Empowerment, Anti-Bullying
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Free, downloadable and complete lesson plan created by a teacher. Plus a coloring sheet for the younger children.
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Each component of the lesson plan provided coincides with the New Jersey Student Learning Standards.
ARE YOU PASSIONATE ABOUT SPREADING TOURETTE SYNDROME AWARENESS?
Contact us if you would like to become a trained One Tic at a Time volunteer! We'll arm you with the information and strategies- all you need is the heart and desire to educate others as to what TS is all about. Email us for more information! chapter@tsa-nyc.org.
NYC Seminar Center
Special thanks to Tod Shapiro, principal and owner of the NYC Seminar Center, for providing a meeting space for our board of directors.
NYC Seminar and Conference Center 71 West 23rd Street, New York, NY 10010 Toll Free: 800-326-5494 • NYC: 646-336-4455