TAA NYC SUPPORT GROUP
Online Support Group 2022-2023
Join us at our monthly support group, held on Zoom on the 2nd Tuesday of each month from 7:30pm - 8:45pm ET. Advanced registration is required for each session.
Topics include coping strategies and self-care, parenting children with tics, supportive family routines, finding resources & coordinating care, and partnering with schools. Participants are asked to affirm our Group Norms and Values prior to attending.
Register to get your personal attendance link here:
NOW OFFERING NEW ONLINE SUPPORT GROUPS
The new groups are:
•Spanish speaking support group – for parents of children with TS
•TS 101 – parent group for children who are newly diagnosed with TS (2nd group run by Tonya Thomas)
•LGBTQ+TS – Young Adult support groups for 18-25 year old’s who identify with this community
•Young Adult Support Group – Starting a new cycle with new and updated topics
BECOME A MEMBER
When you join TAA as a member, you play a critical role in making a difference and you join thousands of individuals, families and professionals who are working to raise public awareness, advance scientific understanding and treatment options, educate professionals, and more!
Plus, a percentage of your membership fee goes directly to our local chapter to help fund our programs and services.
"Grandparents" Virtual Support Group
Wednesday, March 29th. 7-8PM.
LI TAA's very own Rachel Gibbons will be giving an abbreviated version of an in-house presentation on Tourette.
Have a pen and paper on hand, there will be a Q & A to follow her informative presentation.
RSVP a must in order to receive a Zoom link:firstname.lastname@example.org
If you RSVP and do not receive the link by Tuesday morning, March 28th PLEASE email@example.com or text/call 516 512-4330
Participate in a Research Study
Jacqueline Gavrilov is an occupational therapy doctoral student at New York Institute of Technology, looking for volunteers for her research study:
How Self-Esteem and Quality of Life in the Tourette and Tic Disorder Population Affects Occupational Performance
Inclusion criteria for this research study:
Male or female ages 18 – 100+
New York State resident
Has an active diagnosis of Tourette Disorder or Chronic Tic Disorder
If the participant has any co-existing diagnosis, they must be receiving treatment for the diagnosis at the time of participation in this study. Co-existing diagnosis can include ADHD, Anxiety, Depression, OCD, and other behavioral or conduct disorders
Participants that are recruited will be asked to complete an assessment called the Pizzi Health and Wellness Assessment (PHWA), which will be administered via Qualtrics to protect the confidentiality of the participants. The PHWA looks at the health and well-being of a person in several different areas including social, physical, family, occupational, mental/emotional, spiritual, and social health.
After the participant completes this assessment, they will participate in a 30 minute 1:1 interview with myself via Zoom that will consist of an open-ended conversational interview regarding how they feel about their Tourette/tic disorder affecting their areas of occupation.
After data is transcribed, all data collected will be used for assignments related to the school-based research study. Data will be de-identified by removing personally identifying information to protect the privacy of participants.
If you are interested in being part of this research study, reach out to
A Survey For Parents
The University of Rochester is interested in your child's experience with anxiety. If you have a child ages 6-18 years with Tourette or other tic disorder, please use this link below to complete the survey.
The goal is to better understanding the impact of anxiety and barriers to treatment, as well as the effectiveness of some treatments.
A Toolkit for Teachers
As schools across the state open this week, parents of our kids are both excited and apprehensive. Will the teachers know anything about TS? Will my child’s teachers understand and accept my child with all of their symptoms? How can I approach the teachers, make sure that they are educated about these disorders so that my child can have the ultimate opportunity of having a great school year? Download our TAA Eductional Toolkit for Teaching Children with TS.
Check out our pal Jamie Sanders' response video to a careless remark about Tourette Jimmy Fallon made and his thoughts on all Tourette-related jokes.
Comic Book Superhero Twitcha
for School and Remote Learning
Comic is available in hard copy or downloadable format
The themes of Twitcha include: Acceptance, Empowerment, Anti-Bullying
Free, downloadable and complete lesson plan created by a teacher. Plus a coloring sheet for the younger children.
Each component of the lesson plan provided coincides with the New Jersey Student Learning Standards.
Your donations fund what we do.
Company matches are welcome.
Thank you from the TAA NYC Chapter
serving the NYC Tourette Community.
CHILD MIND INSTITUTE IS OFFERING NO COST EVALUATIONS
The Healthy Brain Network continues to provide comprehensive evaluations and reports with recommendations to families.
Participating families receive the following at no-cost:
▶ Comprehensive, study-related diagnostic evaluation
including academic, social-emotional, and attention
and reasoning skills assessments
▶ Feedback report detailing results that can be used
to inform treatment and classroom instruction
(IEP/504 plan), as well as College Board accommodations
▶ Consultation with a licensed clinician to
discuss results and recommendations
▶ Treatment recommendations and
local referrals (if appropriate)
▶ Up to $150 compensation for your time
ARE YOU PASSIONATE ABOUT SPREADING TOURETTE SYNDROME AWARENESS?
Contact us if you would like to become a trained One Tic at a Time volunteer! We'll arm you with the information and strategies- all you need is the heart and desire to educate others as to what TS is all about. Email us for more information! firstname.lastname@example.org.
NYC Seminar Center
Special thanks to Tod Shapiro, principal and owner of the NYC Seminar Center, for providing a meeting space for our board of directors.
NYC Seminar and Conference Center 71 West 23rd Street, New York, NY 10010 Toll Free: 800-326-5494 • NYC: 646-336-4455